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This is an archive article published on August 3, 1999

AIDS — Disclosure debate continues

NEW DELHI, AUG 2: The debate about of the right to privacy of an HIV positive person is brewing once again. This follows the Delhi AIDS C...

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NEW DELHI, AUG 2: The debate about of the right to privacy of an HIV positive person is brewing once again. This follows the Delhi AIDS Control Society’s (DACS) recent letter to the Indian Medical Association about the norms for sexual/marital notification in cases of HIV/AIDS.

The Delhi AIDS Control Society and National AIDS Control Organisation argue that a patient’s status should be revealed to his/her partner with or without the patient’s consent. Social organisations working among AIDS patients believe it is unethical and will prompt more and more HIV positive people to go “into hiding.”

The DACS letter suggests the Supreme Court judgement on the issue be circulated among all clinicians with a view to facilitate a “decision” conforming to the judgement. The Supreme Court ruling in September 1998 on a petition filed by an AIDS patient said that his doctor was justified in telling his fiancee that he was HIV positive.

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Says Dr Ashok Kumar of the All India Institute of Medical Sciences (AIIMS): “Whether you should seek the consent of a patient while informing the spouse varies from patient to patient. So far there was no policy regarding this and it was left to the doctor’s discretion.” NGOs fear the situation may change after the DACS letter.

C S Khariwal, director, DACS says the ruling was being circulated to keep the doctors informed. “The national policy was for informing relatives with the patient’s consent. But for telling a partner, the ruling does not insist on consent,” he adds.

While some lawyers described the Delhi AIDS Control Society letter as unconstitutional, NGOs working in the field are threatening to move the court against it. Many are consoling themselves over the fact that the DACS has not asked the doctors to follow the Supreme Court judgement, it has only asked them to refer to it while handling such situations.

According to AIDS activist Anjali Gopalan, the government is moving against its own efforts to ensure confidentiality to HIV patients by giving doctors the green signal to reveal their medical status to their partners. “We will not hesitate to move the court against this move,” says Gopalan who runs the NGO Naz Foundation. “Once there is no confidentiality, patients will go into hiding rather than risk betrayal by doctors,” she says.

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Aurobindo Ghosh, a lawyer says the ruling, if made universally applicable will also mean violation of Article 14 which guarantees the fundamental right to equality. If in all other medical cases, confidentiality and consent of patient are the law, then the HIV patient cannot be denied this right, he said.

George Pulikan, another lawyer, says that any Supreme Court ruling should be treated as law. “But it is appropriate in only situations that are identical to the case that prompted the ruling,” he adds.

Dr Chinkolal Thansing, who has been working for AIDS patients here, says that doctors should inform a patient’s partner or any relative only with his or her consent or counsel him and make him inform the spouse. He adds that already many doctors were abruptly informing relatives without proper counseling and scaring off the patient.

What the Supreme Court said

  • …the right of privacy is not treated as absolute and is subject to such action as may be lawfully taken for the prevention of crime or disorder or protection of health or morals or protection of rights and freedoms of others.
  • Having regard to the fact the appellant was found to be HIV positive, its disclosure would not be violative of either the rule of confidentiality or the appellant’s right of privacy as Ms Y with whom the appellant X likely to be married was saved in time by such disclosure, or else she too would have been infected with the dreaded disease if marriage had taken place and consummated.
  • The patients deserve full sympathy…. But sex with them or possibility thereof has to be avoided….
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