Maharashtra government forms panel for effective implementation of sickle cell disease programme

Highlighting the pivotal role of the committee, a state health official said, “Our objective is to deliver quality healthcare services to sickle cell patients, incorporating antenatal screening facilities and actively curbing the spread of the disease within society. The committee is tasked with setting standards for the diagnosis of sickle cell disease and providing essential technical assistance.”

The overarching goal is the complete eradication of sickle cell disease from the country by 2047. As part of the National Health Campaign since 2008, the state has undertaken systematic screening, specific diagnosis through HPLC testing, and the provision of free diagnosis, essential treatment, and medications.

A senior health officer from the Directorate of Health Service said, “Additionally, medical professionals, technicians, counsellors, ANMs, and ASHA workers play a vital role in imparting preventive measures and counselling before and after marriage.”

As reported by The Indian Express, sickle cell patients face challenges due to the unavailability of basic medicines, especially in tribal communities like Nandurbar and Gadchiroli. To regulate such irregularities, the state health department will submit monthly reports to the Centre.

Gautam Dongre, Secretary of the National Alliance of Sickle Cell Organizations (NASCO), has expressed appreciation for the state government’s initiative. However, he pointed out that the health department is falling behind in adequately screening patients.

Dongre said, “At the taluka level, the situation is quite alarming, with doctors lacking training in identifying patients with sickle cell anemia and treating them with the necessary knowledge. In cases of complications, patients are often shuttled from one hospital to another. While the initiative is commendable, the health department must delve into the situation and actively engage in fieldwork.”