AHMEDABAD, Sept 30: How apt is the name. Chirag. Perhaps his parents needed that glimmer of hope which he showed when he almost defeated fate which has cruelly conspired against him ever since he opened his eyes to the world. Chirag can’t eat, walk, stand or even lie down without help. He suffers from chronic cerebral palsy. But he survived four chronic problems at the time of his birth and tomorrow the world will see 30 of his paintings 22 years after it had lost hope of even his survival.
Chirag’s story is the story of an abnormally grand will power, undefinable strength, and courageous zest for life. It’s the story of a tragedy he won’t let it be. A fighter to the core, Chirag overcame four major birth related complications just one of them could have been enough to cause chronic cerebral palsy. First, his mother had prolonged labour pain and then when he was born he did not cry, which affected his breathing process and thus the brain. And as if that was not enough there were three loops of the umbilical cord around his neck. Moreover, 24 hours after his birth he had failed to pass urine.
“He’s strong and really intelligent,” says Dr S.R. Apte, lecturer in Occupational Therapy and Co-ordinator of Cerebral Palsy Group at B.M. Institute of Mental Health, Ashram Road, rather fondly. “With the kind of limitations he has, it would have been impossible for anyone in this world to accomplish what he has”.
His effort is childish but monumental. Of the 30 sketches, five are oil paintings. “I was reluctant to give him oil paints, but his parents insisted. They have tremendous faith in him,” says Apte, recalling how he felt Chirag would not be able to handle the rather messy medium.
The paintings are a reflection of his strength more than his artistic imagination. It’s not easy for the cerebral palsied to do anything that involves muscular activity. Someone has to place a sketch pen between Chirag’s fingers, then with the support of the wall he bends down, using his knees as a fulcrum to draw something. The strokes are slow and painful but deliberate and purposeful.
Though his work is full of childish imagination — trees, grass, houses — there are some that make poignant, political statements. On 50 years of Indian independence, Chirag drew the Indian flag but replaced the Ashok Chakra with a wheel chair! Another touching painting shows green grass, clouds and a rainbow but somehow the colours of the rainbow get reflected on the umbrella.
“There is no denying that he is intelligent,” reiterates Apte, who has been overseeing Chirag’s progress at the institute here since the last eight years. “He does sums involving lakhs without using the calculator. He even uses a special toy electronic typewriter to write his name, his parents’ name and where he lives.” He can go on up to a paragraph. Then he gets tired.
Explaining Chirag’s conditions Apte asserts firmly that the cerebral palsied are not “mad” as people believe. Just that the area of the brain controlling muscular activity is damaged, making them lose control of their body movements. But their intelligence can remain intact. In fact, nearly 60 per cent of children suffering from cerebral palsy have `normal intelligence’; a few have even completed graduation from reputed universities.
But by any standards Chirag is exceptional. But the credit also goes to his parents Hasmukh Shah and Indiraben Shah who have stood by him through all his travails. And they will be the proudest when people will appreciate Chirag’s efforts that will be exhibited at the Karnavati Art Gallery, Ellis Bridge here. As for Chirag, he will go on teasing fate, playing truant with destiny. And defeating them.
Chirag, Tujhe Salaam.