Written by Audita Bhattacharya
Saanvi Jitendra, a 15-year-old scoliosis warrior, is releasing a documentary on her Youtube Channel (Sincerely, Saanvi) about her journey with scoliosis. Scoliosis is a sideways curvature of the spine that occurs most often during the growth spurt just before puberty. While scoliosis can be caused by conditions such as cerebral palsy and muscular dystrophy, the cause of most scoliosis is unknown.
The documentary is titled Greater Than The Pain, and speaks all about the different aspects that go into fighting scoliosis. Saanvi has interviewed scoliosis warriors from Bengaluru and patients from all over the world. She has also included small clips that various individuals from around the world shared with her and she has compiled all of these snippets into her documentary.
Saanvi also interviewed her doctor, the late Ketan Khurjekar. “Dr Ketan always wanted to spread awareness about scoliosis as much as possible and make people aware about this condition and its early diagnosis. He wanted to go to schools and create campaigns, and scan school students for scoliosis, as the symptoms are mostly seen in teenagers,” says Saanvi.
“In fact, the day before the tragic accident which took him away, the doctor had messaged me about his idea to create a storyline and execute it as a comic strip about a scoliosis patient and how he achieves superpowers from his spinal fusion surgery,” she added.
“He was always emotionally connected with his patients and he wanted to help them as well as create awareness about the condition in every possible way,” says the teenager.
Speaking about her own journey, she said, “I was diagnosed when I was 12 and I got my surgery six months ago. My fight with scoliosis has led me to believe that I have to help other warriors around the world and make people aware about scoliosis and other such chronic conditions. I wanted people to know that we’re not alone and I reflected upon that and took out this initiative.”
Speaking about the title of her documentary, Saanvi said, “I am very active on Instagram and I even run a scoliosis account (@scoliqueen). I wanted as many people as possible and fellow scoliosis warriors to know that scoliosis is greater than just back pain, it is a fight against one’s own body. This was the turning point for me because I understood how scoliosis affects every single aspect of our lives. We fight mentally, socially, physically, and even spiritually. This is why we’re warriors. My ultimate goal is to shed light on all these aspects, the causes and the pain. I want people to know the truth behind scoliosis and ultimately spread awareness about it.”
Her documentary will be up on her channel this week.