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Govt: Rare disease policy will be finalised by March end

Delhi High Court had told the Centre last week to provide a specific timeline for the finalisation and notification of the policy.

By: Express News Service | New Delhi |
January 23, 2021 2:28:17 am
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After a rap from the Delhi High Court, the Centre has said that a policy for rare diseases drafted last year was delayed by the Covid-19 pandemic and will likely be finalised by March 31.

The High Court had told the Centre last week to provide a specific timeline for the finalisation and notification of the policy. The ministry, in its reply dated January 20, told the court that the 2020 draft policy was earlier placed in public domain for feedback, but its finalisation was delayed by the Covid-19 pandemic.

“In the meantime…. DGHS constituted an Expert Committee to examine the comments/suggestions. The Expert Committee submitted its recommendations, which are under examination to finalise the draft policy,” reads the reply.

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