State yet to release funds for haemophilia patientshttps://indianexpress.com/article/cities/uttar-pradesh/state-yet-to-release-funds-for-haemophilia-patients/

State yet to release funds for haemophilia patients

No funds have been released in the current year of 2012-13 for treatment or diagnosis of haemophilia in the state even after the lapse of first quarter,the Haemophilia Society,which looks into haemophilia cases in UP’s 15 districts,said here on Tuesday.

No funds have been released in the current year of 2012-13 for treatment or diagnosis of haemophilia in the state even after the lapse of first quarter,the Haemophilia Society (Lucknow),which looks into haemophilia cases in UP’s 15 districts,said here on Tuesday.

According to the recommendations of a committee,which was formed on the direction of Allahabad High Court in January 2011,Rs 13.5 crore should have been sanctioned for treatment and diagnosis of haemophilia by the state government,yet,the eight treatment centres in UP have not received a rupee. However,this is nothing new,alleges Vinay Manchanda,the Secretary of the society.

“The first expert committee formed by the state was in 2008 and under the chairmanship of the then Director of Sanjay Gandhi Post Graduate Institute of Medical Sciences,Rs 12 crore were recommended for treatment of all haemophiliacs of UP and Rs 60 lakh for setting up diagnostic facilities. However,for the financial year 2009-10,the government disbursed only Rs 8.48 crore for haemophilia treatment while no money was granted for diagnosis,” said Manchanda.

For the financial year 2010-11,the state government did not pay till February,2011,when a paltry Rs 50 lakh was disbursed to the 10 designated medical colleges that treat haemophilia. Funds to two medical colleges of Benaras Hindu University and Aligarh Muslim University have since been discontinued because these are governed by the Central government although health is a state subject.

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Again,in 2011-12,Rs 6.45 crore was disbursed against the recommendation of Rs 12 crore,and none for diagnosis.

Vinay said that in all of UP,there is only one doctor,Dr Ashutosh Kumar at the CSMMU (Chhatrapati Shahuji Maharaj Medical University),who diagnoses haemophilia. According to the data available with the society,2,700 people have been diagnosed with haemophilia till now in UP while only 1,890 have registered themselves for treatment.

“The discrepancy in cases diagnosed and treated is due to the high cost involved,” Vinay said. “For a one-year-old,expenses usually comes to Rs 8,000 to Rs. 9,000 per year but for a teenager or an adult,it is about Rs 1.5 lakh a year,” he said.

HIV+ man ends life

LUCKNOW: An HIV positive man allegedly committed suicide by shooting himself with a countrymade pistol at his residence in Rae Bareli’s Lalganj locality on Monday evening. A suicide note has been found in which victim admitted he was suffering from AIDS and was undergoing treatment at a hospital in Mumbai where he worked as a taxi driver. He had returned from Mumbai around 15 days ago

“The victim also stated in suicide note that his wife is also suffering from the same disease and he was taking the extreme step because treatment of the disease is costly and he could not afford to it,” said sub-inspector Kailash Khushwaha,who is attached with the Lalganj police station. He added that the victim,who was around 45 years,also said he brought the countrymade pistol from a friend in Mumbai.

The family told the police that victim was suffering from the disease for the last two years and was under depression following his deteriorating condition and the money for treatment.