Maharashtra’s free palliative care initiative supports over 2 lakh patients since 2012

As per yearly data with the health department, 7,567 new patients were treated through outpatient and inpatient services in 2019-2020, while 2,195 home visits were conducted and 4,177 psycho-social interventions were provided.

Despite the challenges posed by the pandemic, the program continued to operate: in 2020-2021, 4,348 new patients were enrolled, with 2,666 home visits and 4,622 psycho-social interventions conducted.

The numbers continued to rise in 2021-2022, with 5,620 new patients, 4,283 home visits and 6,105 psycho-social interventions. In 2022-2023, clinics recorded 4,439 new patients, 3,167 home visits, and 4,486 psycho-social interventions. From April 2023 to March 2024, they reached 4,045 new patients, conducted 3,149 home visits, and provided 4,016 psycho-social interventions.

The initiative addresses the needs of patients with severe conditions, including cancer, stroke, drug-resistant tuberculosis, HIV, mental disabilities and age-related physical limitations. Through a focus on pain management, emotional support and social services, these clinics offer a holistic approach that eases the burden of chronic illness on patients and their families.

“For terminally ill patients, the focus shifts from cure to quality of life. Palliative care allows these patients to live their final days with dignity and comfort,” added the health officer. Pointing out that palliative care goes beyond just treating symptoms, the officer said, “It’s about compassion, respect, and giving people the support they need when they are most vulnerable.”

The cost of private palliative care in India ranges from Rs1,500 to Rs10,000 per day for home-based care and Rs 20,000 to Rs 50,000 per day for inpatient care, depending on the location, services, and facilities provided.

The program’s workforce includes Accredited Social Health Activist (ASHA) workers, who are pivotal in reaching out to patients in remote areas. “ASHA workers are often the first line of support for patients in remote regions. Their role in educating and comforting patients is invaluable,” said Dr Shalini Deshmukh, a medical officer with the program.

Each palliative care team consists of a medical officer, a social worker or multi-task worker, a supervisor, and ASHA workers. These teams offer outpatient and inpatient care, conduct home visits, provide counseling, and dispense essential medications, including morphine for pain relief.

Beyond medical treatment, psycho-social support has been a cornerstone of the initiative. Till date, 143,377 patients have received psycho-social interventions, addressing issues such as substance abuse, social isolation and mental health challenges. “It is crucial to help patients cope with their illness and maintain a positive outlook,” noted Dr Nisha Patil, a social worker with the program.