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Monday, January 17, 2022

progeria

PROGERIA NEWS

Children with progeria hold out messages of hope in lockdown

June 28, 2020 2:43 pm

'Everything will get back to normal soon, so do not lose hope. Together we will all fight.'

Being brave isn't supposed to be easy, but it's the key way to keep moving forward: Sam Berns

October 14, 2019 9:31 am

Berns was 17 when he gave this speech. He died a few days later. His energy, vision, ideas, however, continue to stay with us. 

Mumbai: 8-year-old boy with progeria suffers brain stroke, dies

April 13, 2019 2:15 am

With the disease incidence of one in four to eight million, paediatricians have limited knowledge of progeria treatment, especially in rural India. According to doctors, Ishan was treated more to control his paralysis, and was given aspirin injections to reduce the risk of stroke.

Nihal Bitla, who became face of progeria campaign in India, dies at 15

May 04, 2016 1:01 pm

Nihal Bitla took up the challenge of raising awareness about the disease and of finding more such cases for medical intervention in the country.

Kid fighting progeria aims to lessen sufferings of many like him

January 05, 2016 5:03 am

Nihal Bitla is trying hard to locate 60 progeria patients, like him, to an ongoing clinical trial in Boston.

Gene that controls three different diseases,identified

April 27, 2013 1:52 pm

ERCC4 gene has been linked to two diseases,xeroderma pigmentosum and a type of progeria.

Ikramul dies without meeting Big B

December 28, 2009 2:53 am

Ikramul,the 23-year-old suffering from genetic disorder Progeria,died on Friday night before getting a chance to meet his hero — Amitabh Bachchan.

Paa

June 06, 2020 6:21 pm

There’s grace in Auro,but not in ‘Paa’s script,which sags under the weight of many obvious statements.

Big B plays witty brat in 'Paa': Director

November 23, 2009 2:09 pm

Amitabh Bachchan has turned the clock back by his latest avatar of a 13-year-old 'witty brat' in 'Paa'.

Rare diseases current flavour of Bollywood

November 09, 2009 12:13 pm

In the upcoming flick 'Paa',Amitabh Bachchan plays a child affected with Progeria a rare genetic disorder.

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