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Senior citizen diagnosed with ‘incurable’ brain disorder

The disease is a fatal brain disorder that usually develops in old age.

Written by Tabassum Barnagarwala | Mumbai | Updated: November 11, 2014 11:14 am

Known to affect only one in a million across the globe in a year, the city recorded a case of Jakob disease, with a Vikhroli resident admitted to Jaslok Hospital after being diagnosed.

The disease, also called Creutzfeldt Jakob disease (CJD), is a fatal brain disorder that usually develops in old age and leads to death within a year in over 90 per cent cases.

Murlidhar Ahire (70), a retired employee of Air India, is currently admitted in the acute isolation facility at Jaslok Hospital, after he was shifted from Mulund’s Fortis Hospital owing to lack of an isolation facility. The disease was diagnosed as a case of CJD at Fortis Hospital from where Ahire was transferred to Jaslok over a week ago.

According to his family, Ahire’s health declined in a matter of seven days. He first started becoming forgetful and experienced difficulty in balancing himself while walking. “His symptoms came one-and-a-half months ago. Within days, his condition deteriorated and he was bed-ridden. His eyes turned sore and his body became stiff,” said Tushar Ahire, his younger son.

Dementia, body stiffness, behavioural changes, irritability, difficulty in walking properly, blindness and coma are reported as symptoms in extreme cases.

Dr Om Srivastava, head of the infectious department at Jaslok Hospital, said that the disease can be hereditary, spread through infected person or can occur without any known cause. “In Ahire’s case, the reason for the disease is not known. We can now only provide him supportive treatment as there is no known cure for CJD. He has been admitted in the isolation facility and all nurses take the required precautions while entering the room as the disease is infectious,” said Srivastava.

At present, no family member is allowed inside the isolation facility where he is admitted.

“He was fine nearly two months ago. Now, he cannot speak and does not recognise us. It is difficult to comprehend this so soon,” Bhavik Ahire, the elder son, said.

Following the diagnosis, Ahire also reportedly expressed his wish to end his life. The family and doctors, however, are clueless as to how to react to his wish. “Euthanasia is banned and we cannot do anything about it,” Srivastava said.

According to Tushar, a medication called Pentosan Polysulfate (PPS) was used in northern Ireland for treating CJD. “We will explore options abroad to see if there is any chance to cure him,” he said.

CJD in India
According to the National Institute of Mental Health and Neurosciences (NIMHANS), Bengaluru, the first case of CJD was reported in 1965. The CJD registry of NIMHANS reports 85 cases till September 2005. Experts claim the cases are however under-reported due to absence of diagnostic facilities.

WHAT IS CJD?
Creutzfeldt Jakob disease is a rare and fatal neuro-degenerative disorder that affects the brain. It is infectious and can spread through fluids from the brain and spine.  There is no known treatment to cure the disease. People suffering from it often die within a year of contraction as the disease rapidly progresses in the body.

tabassum.barnagarwala@expressindia.com

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  1. W
    williams Smith
    Mar 26, 2017 at 10:03 pm
    My wife suffered Creutzfeldt - Jakob disease (CJD) for several years. i looked for how to get rid of this Creutzfeldt-Jakob Disease (CJD) for a long period of time, but could not found any solution, my Doctor said to me that there is not cure for Creutzfeldt-Jakob Disease (CJD). So I begin to worry but not too long i saw some good news on the internet on how a herbal doctor cured so many persons of various diseases, and viruses. So i also decided to contact the doctor those people talked about he is by the name Doctor Obiakanze, I quickly copied his email and I emailed him, and i explained my problem to him, he said he has the cure for Creutzfeldt-Jakob Disease (CJD) that I should worry no more and i decided to give him a try because there is no harm in trying. So i started the process, and he prepared his herbal medicine and sent it to me here in my country, so i began to give it to my wife according to his prescription and behold it worked for her. Before 21 days she was totally cured I am happy to say today i am happy and my wife is free from Creutzfeldt-Jakob Disease (CJD).. Please if you also have same, and or similar problem please rush to contact Doctor Obiakanze before it becomes too late for you. His email is
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    1. S
      samu
      Apr 22, 2017 at 9:16 pm
      o sir plz provide me Dr. Obiakanze email id....my bro in law is suffering from CJD disease...help us plz to cure CJD disease...tis is my email id samu.swamy@gmail
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      1. V
        Vivek Yelmame
        May 5, 2017 at 3:04 pm
        o Williams, I would be greatful if you could help me on how to deal with this disease. Also please provide contact details for Doctor Obiakanze . Plese contact me on 00919422857249 or vyelmame@gmail
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      2. R
        roseline
        Nov 8, 2016 at 10:30 am
        Hi all, Grace Wilcot is my name, am from USA. I want to testify to all how I was cured of my brain disease by herbal doctor Chukwu. Brethren this is my story. Few years ago I was having high fever; at a time my temperature was so high that even to breathe was a problem for me. I was treated, and was fine. Later on I begin to do things abnormal so I was praying to God not to let it be what I was thinking this is because my dad died of brain disease Creutzfeldt-Jakob disease (CJD). But I began to see various symptoms like severe headaches, seizures, numbness, nausea, vomiting, difficulty with movement, changes in my hearing, speech, and vision. So when this begin to happen, my doctor diagnosed Brain Disorder he placed me on medications, and I was taking flaxseeds, asparagus racemosus wild, licorice, turmeric, Indian gooseberry (amla), drumstick, protein rich foods, cinnamon and green tea. Herbs with neuroprotective qualities such as sage, Asian ginseng, chamomile, kava-kava, ginkgo biloba, brahmi, holy basil and ashwanha. But upon all this treatment I was taking, I was not getting better. It got to a stage that my system begins to shut down. I was in the hospital for my om check up where someone shouted right inside the hospital after receiving a phone call this his sister have been cured and doctor confirmed she is cured. So my brother that took me to hospital went closer to the man and asked him what has happened so he said his sister have been having brain problem, and have been in psychiatric for some time, that someone who said a herbal doctor cured her of schizophrenia introduced them to the herbal doctor who cured her. The herbal doctor's name was given as Doctor Chukwu and that since then his sister have been taking Dr Chukwu's herbal medicine, and now have be totally cured. So my brother immediately demanded the contact details of the said herbal doctor just for my sake. He contacted the herbal doctor and explained to him that I am suffering from Creutzfeldt-Jakob disease (CJD). So he said he can cure me of my disease and arrangement was made with him and my brother so he prepared the herbs and shipped it to me in my country I took it as directed and from the third day I started taking his herbs I begin to see great difference and behold today I am cured and totally fine. Dr Chukwu's herbal medicine cured me of my CJD and that’s why I am here to tell the world about his herbal medicine. Please if you are here still suffering from brain disease, I must tell you that a messiah have come to save us or you know of anyone who is suffering from same, please quickly contact Dr Chukwu before it will be too late. Dr Chukwu's contact details is as follows, his email is () and his phone number is 2348154800222
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