A group of people suffering from thalassemia are all set to stage a play at Tagore Theatre on Wednesday. Titled Parda Utane Se Pehle,the play is a comedy that has also been directed by a thalassemia patient.
Thalassemia has affected our life,but not our spirit of living. Our life is as normal as an ordinary person has,the only difference is that we have to go through blood transfusion after every 20-25 days. The only thing that hurts is,we do not have better job opportunities as being thalassemic,we are declared medically unfit for jobs, said Aruna Chabra.
While talking to Newsline,director of the play Upasana Ajmani said,The main motive behind doing this play is to create awareness among people about thalassemia. In India,people are not aware about what thalassemia is. Besides this,we want to motivate people for blood donation,as four crore Indians are estimated thalassemia carriers. We want to spread this message that their little contribution can save a life.
I was two-years-old when my parents came to know about my disease. In the beginning,it was really tough as after every twentieth day I had to go through blood transfusion but as time passes,it has now become a part of my life, said Rabia,a performer in her twenties. She further added that it is for the first time,that she is going to perform in front of live audience and it means a lot to her.
The performers are part of the Thalassemia Children Welfare Association,which has 352 members. The association is involved in conducting blood donation camps for thalassemic patients throughout the year. The play is being presented by Creators Sarvjanik Trust.