On April 6,she complained of severe pain in her abdomen and was rushed to ESI Hospital. Doctors referred her to Government Medical College and Hospital (GMCH),Sector 32,where she was operated for hemicolectomy,an operation to remove large part of intestine and an external pouch was attached to her stomach.
It has been more than six months,that 35-year-old Kamlesh Devi is moving from one hospital to another,to get rid of the external bag attached to her stomach.
In these six months,she was shifted thrice from GMCH-32 to PGIMER and similar number of times,she was sent back to GMCH-32.
A doctor at GMCH-32 said,The patients gastrointestinal tract got burst and we removed a part of the gangrenous intestine. For the time being,external ileostomy pouch was attached to the patients abdomen.
The doctor said that the patient was to be operated for the same after three months,however,it was detected that the patient is suffering from a rare disease called Paroxysmal Nocturnal Hemoglobinuria,in which red blood cells and Hemoglobin keeps falling.
Dr Atul Sachdev,director,GMCH-32 said,Planning a surgery in such a case is very complicated and we need clinical hematologist for this. At GMCH-32,we do not have hematologist. The patient was referred to PGI on August 10,where she underwent treatment for a month. The doctors treated her for PNH,but refused to operate on her. Kamlesh Devi was sent back to GMCH-32.
Prem Chand,the patients husband is a labourer and has already spent Rs 2 lakh on her treatment. I am left with no money now. Every week,I spent Rs 2,000 – Rs 3000 on travel and medicines.
He is a member of ESIC (Employees State Insurance Corporation) and had requested the officials to refer his wifes case to some private hospital. Earlier,the medical superintendent shooed me away but yesterday he referred my wifss case to Fortis but in OPD where there was no treatment for the disease.
He added,The hospital administration could not admit my wife as it was not written in the letter. Tomorrow again,I will go and request the MS to give in writing.
Dr NK Taneja,MS,ESI Model Hospital said,We have referred the patient to Fortis. If they will ask,then all expenses will be paid back to the patient.